Cystic Fibrosis/Immune Deficiency

(Posted January 15th 2018 @ 1:00 PM by: Melody Reever)

What can churches do to better accommodate people with cystic fibrosis or an immune deficiency?

  1. Make sure that kids wash their hands or offer hand sanitizer upon entering classrooms.
  2. Don’t play games or do activities where children touch one another, or if you do, make sure that everyone washes their hands afterward.
  3. Let parents know if food will be served. People with CF have to take medication with all meals and snacks. This includes something as simple as a glass of milk.
  4. If you know that someone is displaying symptoms of being sick, let the parents know and let them make the decision to remove their child from class. At the very least, keep children who are coughing or sneezing away from children who are susceptible to germs.
  5. Be understanding when these families can’t be present and participate in every activity.
  6. Pray for the child’s health, both physically and mentally.
  7. Pray for the mom and dad’s physical and mental strength.
  8. Educate your staff and the parents that are part of your children’s ministry.

What is a 504 Plan? How is it different from an Individualized Education Plan (IEP)?

According to Washington University, both involve a child with a disability, as defined by law. However, the IEP involves a child in school receiving specialized instruction and related services. It may include accommodations, but it must include measurable goals. The 504 Plan, on the other hand, does not include specialized instruction or goals, but ensures the child receives accommodations that ensure his or her academic success and access to the learning environment. Both plans are updated annually.

What is Cystic Fibrosis?

Cystic fibrosis is a genetic condition that causes the body to create sticky mucus that clogs the lungs and digestive system. This buildup can make it difficult to breathe and absorb nutrients from food. Because of this, a person with cystic fibrosis may need up to twice the amount of calories per day compared with people who are the same age and weight.

The Cystic Fibrosis Foundation’s website, is an excellent resource for additional information.

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